IBD-A MOM's guide to survival
Well, here we are on day 4 of the FMT and nothing but good news to report! Maddy gets more comfortable with the procedure every day. Yesterday was a real milestone for her. She had 1 bowel movement in the morning and nothing for the rest of the day! Now, this may seem like no big deal but for anyone who has IBD or is close to someone who lives with it, you know that this is a HUGE deal. BM frequency and urgency is something that most people with IBD live with day to day and hour to hour. Some days are worse than others. Maddy has had no less than 5-10 bowel movements per day for a very long time. I never take her anywhere without knowing where the bathrooms are first thing and it is not unusual that we are late for school or other appointments as a result of unexpected bowel urgency. There really is nothing you can do but wait it out and try your best to always leave time for unexpected bathroom breaks. It has been such a huge part of Maddy's life for so long that she has completely forgotten what it's like to not have to go to the bathroom, all the time. In fact, I'm certain that she actually has no idea how often she goes because when she is asked by the doctors about her frequency she always answers less than half of what is actual for her.
Yesterday, Maddy had one bowel movement at 10am and then nothing for the entire day. Even after having a fecal infusion at 11am. That has not been the case for her for well over 3 years! This has been the case for 2 days in a row now. She has been exploring Portland, swimming in the pool, playing Wi and eating. A lot of eating has been going on! She is feeling full of energy and how she is feeling is very evident in her behavior too. She is bursting with energy and is excited to wake up every day. This has not been the case for a long while. Since coming off the prednisone over a month ago, she had been getting more and more lethargic and more and more withdrawn every day.
As I said before, there is still 10 days of treatment to go and we won't know how long this will last...only time will tell. That being said, we all know this is working and we can see it working before our eyes. More importantly, Maddy can feel it working. If I have to administer a fecal transplant every month, week or day to avoid the harsh medications and all the life long side effects they have, and to avoid watching my baby suffer, I will do it. And I will do it gladly. Never in a million years did I see myself or Maddy going through this strange and miraculous process but here we are, and strange and miraculous it is! Poop as medicine. Who knew!?! The craziest part is, we just flush it away, every day! No pain, no side effects. Once you get passed the ick factor, you really can get quite comfortable with the whole thing. Especially when you watch your child's health restored. Never again will I look at poop the same way...and neither should you. The human body never ceases to amaze me, it really is quite unbelievable. I for one am raising a glass to the power of poop tonight! :)

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